Category Archives: PWS Best Practice Guidelines

Free Resources – Getting Ready For School Webinar, Slides and Charts

Dear PWSA (USA) Friends and Families, If you attended last weeks Webinar on “Getting Ready For School” Presented by Michelle Holbrook, Heather Molzer and Kate Beaver, thank you so much for attending and participating in a great Questions and Answers … Continue reading

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Tips For Teachers presented by Elizabeth Roof, M.A.

We are happy to present a brand new resource. A PWSA (USA) video with Elizabeth Roof presenting Tips for Teachers which is available on YouTube.  This fantastic resource for teachers has two parts: The Video which you can view here. A related Tool Box for Teachers which … Continue reading

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Gastroparesis: The Newest Threat

Update: if you receive our PWSA (USA) newsletter, The Gathered View, the May-June 2013 edition that has the article below is probably in your mailbox. At the time we wrote this, we had stated that of the G.I. perforation deaths … Continue reading

Posted in PWS Best Practice Guidelines, Research, Support | 1 Comment

Flu Season is Here — What Should We Do?

Flu Season is Here — What Should We Do? By Janalee Heinemann – Director of Research & Medical Affairs, PWSA (USA) Here are some questions that have come to me at PWSA (USA) and answers from members of our Scientific … Continue reading

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PWS Best Practice Guidelines Now Available!

In many ways, creating useful resources to support the quality of life and care of people with Prader-Willi syndrome (PWS) is one of the most important ongoing tasks of PWSA (USA).  Visitors to our office are often impressed by the size … Continue reading

Posted in Caregiver Conferences, International Prader-Willi Syndrome Organization, Prader-Willi Syndrome Association (USA), PWS Best Practice Guidelines, PWSA (USA), Resources | Tagged , , , , | Leave a comment