Category Archives: PWSA (USA)

“When Your Baby Is In The Hospital NICU” New Resource

A new resource from Prader-Willi Syndrome Association (USA) for families who have just received a diagnosis and have a baby in the NICU We are very pleased to share with you this wonderful publication that will be a tremendous resource … Continue reading

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The First Ever School Times E-Letter!

  EVANS TAKE Welcome to the first issue of School Times!  The first regular publication to deal exclusively with PWS related school issues.  We hope as this bi-monthly e-letter evolves it will be an essential school resource for you and … Continue reading

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Videos from PWSA (USA) International Hyperphagia Conference

Several of the world renown researchers who gave presentations at our International Hyperphagia Conference have given permission for us to put their presentation on our the PWSA (USA) web site and Youtube channel.  See these lectures by clicking on the … Continue reading

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Our next One SMALL Step host conference is this Sunday, July 29 at 12pm Eastern. The webinar will begin with a presentation by Theresa Strong who will explain how your One SMALL Step funds are being used to advance the … Continue reading

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PWS Best Practice Guidelines Now Available!

In many ways, creating useful resources to support the quality of life and care of people with Prader-Willi syndrome (PWS) is one of the most important ongoing tasks of PWSA (USA).  Visitors to our office are often impressed by the size … Continue reading

Posted in Caregiver Conferences, International Prader-Willi Syndrome Organization, Prader-Willi Syndrome Association (USA), PWS Best Practice Guidelines, PWSA (USA), Resources | Tagged , , , , | Leave a comment