It is January 2012, and whenever the calendar page is turned to a new year, the fresh start brings an upsurge of hope and excitement. This is the feeling here in the “bricks and mortar” heart of the PWS community, a.k.a. the offices of PWSA (USA). We know, though, that the lifeline of everything we do here is actually all of the individuals with PWS, and those who care for them, all around the world! And we wish all of you a happy, healthy, and peaceful 2012!
We also wanted to bring you a summary, as we look ahead through the months of this year, of all the different ways you, and your extended families, friends, acquaintances and communities can help us raise awareness of PWS and build an even stronger support network. As stated in an earlier blog post, “at PWSA (USA), serving, supporting, and strengthening families is a key part of our mission. In fact, a commitment to families is part of the ”DNA” of PWSA (USA) because we were started over 30 years ago by a few families who gathered together to create the support they could not find anywhere else. Because of their commitment and vision, PWSA (USA) exists today to serve a new generation of people and families living with PWS.” As PWSA (USA) continues the important and crucial work of providing assistance to and improving the lives of individuals with PWS, the following efforts are ways in which you are able to give the work we are doing a “thumbs up”:
- The Angel Card and “This Is My Association”: You have all received your Angel Card brochure in the mail, and many of you were the first to see the “This Is My Association” video during our National Conference in Orlando in November. If you and your family members have already donated to this effort through the Angel Card Campaign, thank you! If you would like to view the “This Is My Association” web page, the link is www.thisismyassociation.org. There is also the opportunity to donate securely online through that web page, and please know that any and all donations are very much-needed and appreciated!
- “Prader-Willi Syndrome On The MoveSM: “On The Move” (OTM) Event Planning Season has begun! While it seems as if the 2012 May Awareness Month is a long time off, really it is just around the corner! We have several fun new things happening with the OTM campaign for 2012. General OTM planning packets and event-specific packets are available now on the OTM dedicated webpage, www.pwsausa.org/onthemove , so we hope you will check your calendars and choose an event and a date now! Watch this blog, your e-bulletin, the PWSA (USA) website, and our Facebook page for more information, coming very soon! We are very excited to see all of the fantastic accomplishments in raising awareness and in fundraising for this year’s On The MoveSM campaign….will YOU be On The MoveSM?
- “Spare Your Change! for PWSA (USA) Research”: Those of you who attended the conference in November will recall that you had the opportunity to place your spare change in collection jars specifically labeled with the phrase above. You were invited to take some of those same labels home and continue consolidating all that loose change, in support of the efforts of PWSA (USA) to advance PWS research. We hope your “change efforts” are adding up! Additional labels can be obtained by calling our office, 1-800-926-4797.
- Grassroots Fundraising: We also want to let you know that awareness and fundraising efforts are welcome year-round! These can be as simple as a neighborhood car wash or as elaborate as your imagination, energy, and volunteer help can make them! Funds raised through these efforts can be designated for support services, for research efforts, or some combination of the two. We are happy to provide you with an information Fundraising Packet which will give you event ideas and help you through all the planning stages – call our office!
We are excited for all of the amazing things our PWS community will accomplish in 2012 – it is going to be a FANTASTIC year!