Work and Services of the Family Support Program

Did you know?

  • When the family of someone newly diagnosed with Prader-Willi syndrome calls the national office we share information regarding our many services, connect them with an active E-mail group for Parents, send The Package of Hope, or any other age appropriate information, and connect them with their local chapter
  • For our doctors and pediatricians, we send The Physician’s Packet which includes a DVD on PWS for professionals, The Growth Hormone book, The Medical Alerts booklet, and more. We include a personal letter to the doctor with an explanation of our services and the child’s name and birthdate.
  • We work hand in hand with our local chapter’s to provide the best information for our families on a local and national level.
  • We send our information all over the world and have PWS contacts in 98 countries through IPWSO (International Prader-Willi Syndrome Organization).
  • We have trained parent mentors that give information and support to our families from ages 0 through 17.
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About pwsatoday

PWSA (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.
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