“When Your Baby Is In The Hospital NICU” New Resource

A new resource from Prader-Willi Syndrome Association (USA) for families who have just received a diagnosis and have a baby in the NICU

When Your Baby is in the Hospital NICU_Page_1

Click Here to See This Resource

We are very pleased to share with you this wonderful publication that will be a tremendous resource for our new families.  As you will read, it is thanks to the collaborative efforts of some wonderful families of a child with PWS who have a medical background, and many of our PWSA (USA) professional advisors.  A special thanks goes to Colette and Eric Joncas who had the vision for this publication and were the main writers. It is wonderful that we have such talented parents were willing to give of their time and talents!

In the very near future our new website will be unveiled at which time this will be included, but meanwhile we want to share it with all of you, and we will send it to every new family who calls our office that has just had a child diagnosed with Prader-Willi syndrome. We have many wonderful resources for the new parent, but this will enable us to start them with just the information they need at that time.

Janalee Heinemann, MSW

Director of Research & Medical Affairs


Vice President, IPWSO

About pwsatoday

PWSA (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.
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