Joe’s Mission for Prader-Willi Syndrome

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On September 11, 2012, my baby cousin Siena was born. Shortly after, Siena was diagnosed with Prader Willi Syndrome (PWS), a rare genetic disorder that occurs in only 1 of 15,000 births. PWS typically causes low muscle tone, short stature, incomplete sexual development, developmental delays, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity.

Over the last year and a half, I have watched my cousin John and his wife Felicia devote their lives to raising Siena and making sure she lives as normal of a life as possible. Each day has been its own adventure, each one containing its own struggle, success story, and next step to helping Siena.

Currently, there is no cure for Prader Willi Syndrome. That’s where you and I can help. This May, I will be running the Cox Providence Marathon to raise money for Prader Willi Syndrome. I urge you to donate, because the struggle Siena and her parents have endured in only a year and a half’s time will only continue. Training for a marathon is tough, but Siena is the toughest person I know.Please click the green button to make your donation, and stay tuned for more updates. Tell your friends, and be sure to make #Miles4Siena go viral! -Joe DiMuccio

 Click Here To Donate To Joe’s Event Page

 Click Here To Create Your Own Page For The Person You Love

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About pwsatoday

PWSA (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.
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