May Is Prader-Willi Syndrome Awareness Month

 It is officially Prader-Willi Syndrome Awareness Month!  May is a time for friends and families around the country to spring into action for Prader-Willi Syndrome. We can all make a positive difference in the lives of those living with PWS by becoming involved and spreading awareness this May. Below are some ways you can make this May count!





Spread Awareness and Fundraise OnlinePrader-Willi Syndrome Association (USA) makes it easy to spread awareness and fundraise onlineIf you want to set up your own fundraiser/awareness page online for FREE: 

  1. Go to “PWSA On The Move 2014
  2. Click the green “Fundraise” button
  3. Set up your own fundraising page and start sharing with friends and family through the simple email and social media tools


Show Some Facebook Love:
  • Change Your Profile Picture and Cover Photo
  • Share an Awareness Video via social media
  • Inform your friends and family about upcoming events, news, stories and activities on your facebook wall.  See more here








Attend an  Events Across The Country:

There are tons of Prader-Willi Syndrome Awareness events and activities springing up all across the country. Consider attending an event or find out more information about all events and activities here








Get Prader-Willi Syndrome Awareness Logo Items:

The PWSA (USA) Logo Items are a unifying symbol of hope and awareness in our community.  Last year, hundreds of “On The Move” logo items were distributed nationwide and were worn by advocates just like you in support of PWS Awareness.  This year we have a new logo and new products that we are sure you will enjoy! To order today contact Pam Ferrara at 941-312-0400 or email







Plan An Event: 

Through Firstgiving you can set up your event, ask participants for donations online through emails and social media, and registrations are automated through the process.


If you want to have an “On The Move” Event:


  1. We will create a FirstGiving event and send you a log-in ID & password
  2. Log-in and add event information and pictures to customize your event page
  3. Send emails or post to your social network using the easy to use tools for registration and donations









Share Your Event:

Already hosting an event? We would love to hear about it. Submit your event here and we will post it on our website, share it in our community blog and social media outlets .










More Ways To Get Involved: 

For more information on how you can get involved this May call Ben Karp, Communications Specialist for PWSA (USA) at 941-312-0400 or email


About pwsatoday

PWSA (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.
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