Category Archives: International Prader-Willi Syndrome Organization

Janalee Heinemann on Therapeutic Development and Rob Nicholls Webinar

Follow-up to Dr. Rob Nicholls webinar Dr. Nicholls did a wonderful job on describing the genetics of PWS and his involvement with some of the major breakthroughs in this area. We are very fortunate to have him on our PWSA … Continue reading

Posted in International Prader-Willi Syndrome Organization, Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, Research, Uncategorized | Leave a comment

PWS Best Practice Guidelines Now Available!

In many ways, creating¬†useful resources to support the quality of life and care of people with Prader-Willi syndrome (PWS) is one of the most important ongoing tasks of PWSA (USA).¬† Visitors to our office are often impressed by the size … Continue reading

Posted in Caregiver Conferences, International Prader-Willi Syndrome Organization, Prader-Willi Syndrome Association (USA), PWS Best Practice Guidelines, PWSA (USA), Resources | Tagged , , , , | Leave a comment