Category Archives: Prader-Willi Syndrome Awareness

Janalee Heinemann on Therapeutic Development and Rob Nicholls Webinar

Follow-up to Dr. Rob Nicholls webinar Dr. Nicholls did a wonderful job on describing the genetics of PWS and his involvement with some of the major breakthroughs in this area. We are very fortunate to have him on our PWSA … Continue reading

Posted in International Prader-Willi Syndrome Organization, Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, Research, Uncategorized | Leave a comment

Free Resources – Getting Ready For School Webinar, Slides and Charts

Dear PWSA (USA) Friends and Families, If you attended last weeks Webinar on “Getting Ready For School” Presented by Michelle Holbrook, Heather Molzer and Kate Beaver, thank you so much for attending and participating in a great Questions and Answers … Continue reading

Posted in Advocacy, Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, PWS Best Practice Guidelines, Support | Tagged , , , , , , , | Leave a comment

Tips For Teachers presented by Elizabeth Roof, M.A.

We are happy to present a brand new resource. A PWSA (USA) video with Elizabeth Roof presenting Tips for Teachers which is available on YouTube.  This fantastic resource for teachers has two parts: The Video which you can view here. A related Tool Box for Teachers which … Continue reading

Posted in Advocacy, Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, PWS Best Practice Guidelines, Support | Tagged , , , , | Leave a comment

From Emotions to Advocacy

“Effective advocacy comes from research, planning and preparation.  Successful advocates know that is important and what is not worth fighting about.  When you finish this book, you will have acquired the knowledge and skills you need to be an effective … Continue reading

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Evan’s Take: The Lehigh University Special Education Law Symposium: Report 1

Prepared by Evan Farrar, M.A., PWSA (USA) Family Support Counselor Last week I represented PWSA (USA) and the PWS community at the Special Education Law Symposium sponsored by the College of Education at Lehigh University in Bethlehem, PA.  http://coe.lehigh.edu/law Participants … Continue reading

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We Put The Fun in Fundraiser!

It is January 2012, and whenever the calendar page is turned to a new year, the fresh start brings an upsurge of hope and excitement.  This is the feeling here in the “bricks and mortar” heart of the PWS community, … Continue reading

Posted in Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, Prader-Willi Syndrome on the Move | Tagged , , , , | Leave a comment

Awareness Doesn’t End With May!

With the end of Prader-Willi Syndrome Awareness Month in May it is a good time to remember that promoting Prader-Willi syndrome awareness– like supporting people living with PWS and their families -is important every single day of the year.  So, even as our first … Continue reading

Posted in National Conference, Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, Prader-Willi Syndrome on the Move | Tagged , , , | Leave a comment