Category Archives: Research

“When Your Baby Is In The Hospital NICU” New Resource

A new resource from Prader-Willi Syndrome Association (USA) for families who have just received a diagnosis and have a baby in the NICU We are very pleased to share with you this wonderful publication that will be a tremendous resource … Continue reading

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We Need Your Help With New Growth Charts For PWS

Dr. Merlin Butler, chairperson of our PWSA (USA) Scientific Advisory Board, is working with us to create a PWS growth chart for ages 3 – 18. We obtained a grant from Pfizer to create this growth chart and reproduce our … Continue reading

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Janalee Heinemann on Therapeutic Development and Rob Nicholls Webinar

Follow-up to Dr. Rob Nicholls webinar Dr. Nicholls did a wonderful job on describing the genetics of PWS and his involvement with some of the major breakthroughs in this area. We are very fortunate to have him on our PWSA … Continue reading

Posted in International Prader-Willi Syndrome Organization, Prader-Willi Syndrome Association (USA), Prader-Willi Syndrome Awareness, Research, Uncategorized | Leave a comment

Free “Research For Prader-Willi Syndrome” Webinar Recording

Dear Friends and Families, If you attended Tuesday nights  webinar on “Research For Prader-Willi Syndrome and Rob Nicholls Ride For Research”, thank you so much for attending and participating in a great Questions and Answers session. The participation we received … Continue reading

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Gastroparesis: The Newest Threat

Update: if you receive our PWSA (USA) newsletter, The Gathered View, the May-June 2013 edition that has the article below is probably in your mailbox. At the time we wrote this, we had stated that of the G.I. perforation deaths … Continue reading

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Videos from PWSA (USA) International Hyperphagia Conference

Several of the world renown researchers who gave presentations at our International Hyperphagia Conference have given permission for us to put their presentation on our the PWSA (USA) web site and Youtube channel.  See these lectures by clicking on the … Continue reading

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Delayed Stomach Emptying in PWS

Re: Gastric Emptying Study Sponsored by PWSA (USA) I have completed the final control for the patient’s gastric emptying portion of the PWS study.  Gastric emptying was delayed for nearly all the Prader-Willi subjects and was normal for all the … Continue reading

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