Tag Archives: Awareness

Word of the Day: Complexity

The word of the day for me is complexity because each speaker at the Special Education Law Symposium makes a point of emphasizing the complexity of special education law and the special education system.  The reasons for this complexity are … Continue reading

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Joe’s Mission for Prader-Willi Syndrome

On September 11, 2012, my baby cousin Siena was born. Shortly after, Siena was diagnosed with Prader Willi Syndrome (PWS), a rare genetic disorder that occurs in only 1 of 15,000 births. PWS typically causes low muscle tone, short stature, … Continue reading

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IPWSO Conference- A Story From A Self Advocate

To our PWSA (USA) families from the UK, Tomorrow starts our last day of the international conference in Cambridge, but I did want to let you know that the IPWSO conference hosted by PWSA UK has been a huge success.  … Continue reading

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Evan’s Take: The Lehigh University Special Education Law Symposium: Report 1

Prepared by Evan Farrar, M.A., PWSA (USA) Family Support Counselor Last week I represented PWSA (USA) and the PWS community at the Special Education Law Symposium sponsored by the College of Education at Lehigh University in Bethlehem, PA.  http://coe.lehigh.edu/law Participants … Continue reading

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Welcome to PWSATODAY

In this ongoing blog, we will share with you what’s happening at PWSA (USA) today including ideas for spreading awareness, important information on resources and strategies for supporting people living with Prader-Willi syndrome (PWS), encouragement for families raising a child … Continue reading

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