Tag Archives: Prader-Willi Syndrome Association

“When Your Baby Is In The Hospital NICU” New Resource

A new resource from Prader-Willi Syndrome Association (USA) for families who have just received a diagnosis and have a baby in the NICU We are very pleased to share with you this wonderful publication that will be a tremendous resource … Continue reading

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Free Resources – Getting Ready For School Webinar, Slides and Charts

Dear PWSA (USA) Friends and Families, If you attended last weeks Webinar on “Getting Ready For School” Presented by Michelle Holbrook, Heather Molzer and Kate Beaver, thank you so much for attending and participating in a great Questions and Answers … Continue reading

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From Emotions to Advocacy

“Effective advocacy comes from research, planning and preparation.  Successful advocates know that is important and what is not worth fighting about.  When you finish this book, you will have acquired the knowledge and skills you need to be an effective … Continue reading

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IPWSO Conference- A Story From A Self Advocate

To our PWSA (USA) families from the UK, Tomorrow starts our last day of the international conference in Cambridge, but I did want to let you know that the IPWSO conference hosted by PWSA UK has been a huge success.  … Continue reading

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Videos from PWSA (USA) International Hyperphagia Conference

Several of the world renown researchers who gave presentations at our International Hyperphagia Conference have given permission for us to put their presentation on our the PWSA (USA) web site and Youtube channel.  See these lectures by clicking on the … Continue reading

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PWSA (USA) ~ Serving New Parents Every Day!

As most of you know, for over 12 years PWSA (USA) has provided free of charge to new parents of a child with Prader-Willi syndrome an extensive PACKAGE OF HOPE since 2001.  That packet includes such things as Nutritional Care … Continue reading

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