Tag Archives: Prader-Willi

Knowledge Is Power

It is said that knowledge is power.  This certainly is true for parents of students with PWS.  Knowing how to find and use information is an important special advocacy skill for parents.  Below is some information, from the Special Education … Continue reading

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Word of the Day: Complexity

The word of the day for me is complexity because each speaker at the Special Education Law Symposium makes a point of emphasizing the complexity of special education law and the special education system.  The reasons for this complexity are … Continue reading

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Agents of Change for Prader-Willi Syndrome

This week I am representing PWSA (USA) and the PWS community at the Special Education Law Symposium sponsored by the College of Education at Lehigh University in Bethlehem, PA.  Today the keynote address was given by Michael Yudin who is … Continue reading

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May Is Prader-Willi Syndrome Awareness Month

 It is officially Prader-Willi Syndrome Awareness Month!  May is a time for friends and families around the country to spring into action for Prader-Willi Syndrome. We can all make a positive difference in the lives of those living with PWS by becoming involved … Continue reading

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Joe’s Mission for Prader-Willi Syndrome

On September 11, 2012, my baby cousin Siena was born. Shortly after, Siena was diagnosed with Prader Willi Syndrome (PWS), a rare genetic disorder that occurs in only 1 of 15,000 births. PWS typically causes low muscle tone, short stature, … Continue reading

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“When Your Baby Is In The Hospital NICU” New Resource

A new resource from Prader-Willi Syndrome Association (USA) for families who have just received a diagnosis and have a baby in the NICU We are very pleased to share with you this wonderful publication that will be a tremendous resource … Continue reading

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Free Resources – Getting Ready For School Webinar, Slides and Charts

Dear PWSA (USA) Friends and Families, If you attended last weeks Webinar on “Getting Ready For School” Presented by Michelle Holbrook, Heather Molzer and Kate Beaver, thank you so much for attending and participating in a great Questions and Answers … Continue reading

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Tips For Teachers presented by Elizabeth Roof, M.A.

We are happy to present a brand new resource. A PWSA (USA) video with Elizabeth Roof presenting Tips for Teachers which is available on YouTube.  This fantastic resource for teachers has two parts: The Video which you can view here. A related Tool Box for Teachers which … Continue reading

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